Rare cancers: Cracking the code

About 246,000 people across the EU are affected by rare cancers. [Chaikom/Shutterstock]

Read this Special Report online.

The growing number of cases of rare diseases has raised eyebrows in the EU and policymakers are now exploring ways to understand and tackle the complexity of the phenomenon.

Rare cancers – those with fewer than five cases out of 10,000 – belong to this category. It may look small, but according to European Commission estimates, about 246,000 people across the EU are affected by such types of cancer, making them more significant than they appear.

Sarcomas are a diverse family of rare cancers. Due to poor diagnosis and low awareness among health practitioners, they pose a particular challenge to both patients and policymakers.

Download PDF