Metastatic breast cancer (MBC) has long been disregarded by advocacy groups, researchers and policymakers. As a result, little is known about the scope of the disease, its economic burden and the best way to treat it.
Medical data owners should cooperate and no longer monopolise their databases and policy makers should consider what is most important: protecting the privacy of the present MBC patients or allowing privacy exceptions to save the lives of future MBC patients, writes Suzanne Leempoels.
A group of metastatic breast cancer experts has urged policymakers to empower patients with greater choice and participation in their treatment and care, to improve the quality of life of patients, their carers and families.
Metastatic breast cancer (MBC) kills half a million women in the EU every year, yet progress on the quality of life and survival time of MBC patients remains elusive. MEPs addressed the need to improve patient outcomes with a policy roadmap launched on Tuesday (17 October).