Translating Research to Health Innovation: How can forthcoming legislation pave the way for better care in rare diseases?

Promoted content

Several European Commission 2012 initiatives will impact healthcare innovation. The Horizon 2020 research programme will seek to link the health industry, public sector and academia in new research clusters. A revision to the Directive on Clinical Trials will seek to promote health research and innovation. Meanwhile, the Transparency Directive will ensure that research efforts translate into faster access to much- needed medicines.

Rare diseases — for which research efforts and access to innovative treatments need to be fostered — is an area of high European added-value, and will be affected by these rule changes in significant ways. Rare diseases embody key challenges for the EU policy-maker seeking to balance efficiency with cutting- edge innovation.

From the perspective of rare disease patients’ needs, the workshop will examine these legislative developments and seek participants’ views on:

• How will Horizon 2020 channel research efforts towards severe and neglected maladies such as rare diseases?

• What solutions will Clinical Trials legislation offer to facilitate research on rare diseases in Europe?

• How will these initiatives link with other EU law such as the Cross-border Healthcare Directive and the Transparency Directive?

Subscribe to our newsletters

Subscribe

Want to know what's going on in the EU Capitals daily? Subscribe now to our new 9am newsletter.