Heart UK: FH patient groups need to unite to influence policy

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“FH is starting to take off in certain European countries,” said Jules Payne, Chief Executive of Heart UK.

Speaking at a cardiovascular conference in Glasgow, Payne said that “it is the right time’ to build a pan-European network of FH patient’s organisations.

“The whole point of the network is to support new organisations in other countries, but also to share best practices with existing organisations,” the Heart UK head added.

Familial hypercholesterolemia (FH) is a genetic disorder characterized by high cholesterol levels in the blood and early cardiovascular disease.

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