MBC is more than just a lethal disease. It has a toxic impact on most if not to say all aspects of MBC patient’s lives. A situation that is aggravated by their underdog position, even in the breast cancer community itself.
We have to increase the survival rate for metastatic breast cancer patients. Science has done its part and hopefully will keep up. Policy is supposed to support it, requiring a continuous effort among multiple actors, argues MEP Alberto Cirio.
Medical data owners should cooperate and no longer monopolise their databases and policy makers should consider what is most important: protecting the privacy of the present MBC patients or allowing privacy exceptions to save the lives of future MBC patients, writes Suzanne Leempoels.