About: patients
How European reference networks help Ukrainian patients
European reference networks (ERNs) have started sharing their knowledge to help more than two million Ukrainian patients suffering from rare diseases, with one expert describing the condition of those still in the country as "catastrophic".
‘Increasingly popular’ patient engagement in Alzheimer research is bearing fruit
Patient involvement in research on dementia has shown to be mutually beneficial, both to the quality of medical studies and to people’s rights to be involved in relevant research about their own condition, according to health experts.
Heavy use of antibiotics in COVID-19 treatment likely to increase AMR
COVID-19 pandemic has helped raise political awareness of health issues but the widespread misuse of antibiotics in COVID patient treatment is likely to result in increased antimicrobial resistance, health experts have warned.
Cancer fight requires optimism but also prudence, says top researcher
Any EU policy aimed at eradicating cancer must combine optimism, prudence and the realism of scientific evidence, the new boss of the EU research team on cancer, Walter Ricciardi, told EURACTIV in an interview.
Empowering patients for a better health
Concepts like the multisectoral approach and people-centred health services are turning the healthcare sector upside down, putting people back at the core and breaking silos for implementing cross-sectoral policies.
People-centred healthcare arrives at the European Parliament
A different approach to healthcare looping around health needs and expectations of people rather than diseases was touched in an event at the European Parliament, where participants and speakers called for more patient empowerment in the EU health agenda.
MEPs step up action to protect terminally ill workers in the EU
A group of EU lawmakers has taken the UK-led “Dying to Work” campaign to the EU in an effort to mobilise support for terminally ill patients across Europe, who face unfair treatment at work.
How patient groups could help tackle ‘fake news’ on vaccination
Patient groups play a crucial role in providing the right information and thus tackling fake news on vaccination, according to experts, who say this is increasingly necessary to restore confidence in this field.
Health care risks being forgotten in Brexit talks, industry warns
Health risks being forgotten in Brexit negotiations, potentially delaying the availability of new medicines and imposing large costs on manufacturers, public health leaders have warned.
Empower cancer patients to improve quality of life, say experts
A group of metastatic breast cancer experts has urged policymakers to empower patients with greater choice and participation in their treatment and care, to improve the quality of life of patients, their carers and families.
EU lawmakers push for better outcomes for metastatic breast cancer patients
Metastatic breast cancer (MBC) kills half a million women in the EU every year, yet progress on the quality of life and survival time of MBC patients remains elusive. MEPs addressed the need to improve patient outcomes with a policy roadmap launched on Tuesday (17 October).
Dutch health minister: EMA relocation is not entertainment, listen to the Commission
The European Medicines Agency (EMA) is not a toy to be played with by politicians, Edith Schippers told EURACTIV.com. The decision on the agency's relocation should be based on the European Commission's assessment, she argues in an interview.
Drug agency relocation talks divide old and new EU members
The debate over where to relocate the London-based European Medicines Agency (EMA) after Brexit has divided the other 27 EU member states, despite calls for an urgent decision from the drugs industry and patient groups.
EU Parliament demands clarity in public funding of drugs R+D
A European Parliament resolution adopted yesterday (2 March) called for transparency and clarity of public funding on research and development of new drugs, claiming that in such cases public investment should be reflected in the price of drugs.
Health matters should supersede European bureaucracy
European red tape should not be an obstacle to effective healthcare. For patients with diseases like sarcoma, waiting means suffering and often avoidable death, writes Marlene Mizzi.
Patients group: ‘Access to healthcare is a basic EU citizens’ right’
The European Parliament elections and the nomination of a new Commission next year offer a fresh opportunity for patients to encourage policymakers to commit to a healthier Europe, says Anders Olauson.
Private clinics deny patients treatment as Greece’s health system collapses
Greece's private healthcare clinics said on Tuesday (29 October) that they would not accept patients insured by the country's main healthcare facility, the National Organisation for Healthcare Provision (EOPYY), because the organisation owes €800 million in private healthcare facilities, according to the newspaper Ekathimerini.
Parliament wants tougher medical devices control without extra burdens for SMEs
The European Parliament on Tuesday (22 October) voted to improve the control on medical devices via strengthened traceability rules and transparency of information for patients and medical staff, but without creating additional burdens for small manufacturers.Parliament wants stricter control on medical devices
The European Parliament on Tuesday (22 October) voted to improve the control for medical devices via strengthened traceability rules and transparency of information for patients and medical staff, but without creating additional burden for small manufacturers.MEPs can make an informed decision on medical devices in Europe
On 22 October, the Parliament will vote to decide the course of the EU's Medical Devices Regulation, but several of the amendments proposed by the ENVI Committee could endanger patients, in particular one that allows for the re-use of all medical devices, says Serge Bernasconi.Strong data protection rules for high-quality healthcare
Health and medical data need specific attention when legislation on data protection is at stake. Patients’ data contain highly sensitive information and require particularly strict protection and security mechanisms against any unauthorised access, mismanagement, or identity theft, says Katrín Fjeldsted.