About: rare diseases

Health 07-04-2017

IMI chief: ‘We need to learn how to share data in a safe and ethical manner’

Ethicists, humanists, lawyers and patients should come together to understand the risk of data in healthcare and whether patients are willing to take that risk, Pierre Meulien told EURACTIV.com.
Health 08-02-2017

Andriukaitis: ‘Rare cancers present a particular challenge’

The European Commission’s priority when tackling rare cancers such as sarcomas is to ensure European Reference Networks (ERNS) are put in place so that all patients have access to the best expertise available in the EU, Vytenis Andriukaitis told Euractiv.com in an interview.
Rare disease
Health 27-02-2015

Patient organisation: Unacceptable differences in member states for people with rare diseases

There are huge differences when it comes to access to therapies for patients with rare diseases. The Commission could do more to make member states aware that this is unacceptable, says Terkel Andersen.

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