About: rare diseases

Health 14-06-2021

Media Partnership – How to address the unmet needs of rare disease patients by transforming the European OMP landscape

The European Expert Group on Orphan Drug Incentives (OD Expert Group) has been established to discuss and bring forward innovative proposals to stimulate innovation and foster research into therapies for rare diseases.
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Health 28-02-2020

Rare diseases Day at the European Parliament

People living with SMA, ALS and other rare disease was the focus of the Rare Disease event at the EU Parliament on 18 February. The event was organised by Biogen in collaboration with EURORDIS, the patient organisation for rare diseases.
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Translating Research to Health Innovation: How can forthcoming legislation pave the way for better care in rare diseases?

Several European Commission 2012 initiatives will impact healthcare innovation. The Horizon 2020 research programme will seek to link the health industry, public sector and academia in new research clusters. A revision to the Directive on Clinical Trials will seek to promote health research and innovation. Meanwhile, the Transparency Directive will ensure that research efforts translate into faster access to much- needed medicines.